European Journal of Integrative Medicine
Volume 3, Issue 4 , Pages e271-e279 , December 2011

Self-reported changes in quality of life among people with multiple sclerosis who have participated in treatments based on collaboration between conventional healthcare providers and CAM practitioners

  • L. Bjerre

      Affiliations

    • The Danish Multiple Sclerosis Society, Mosedalvej 15, 2500 Valby, Denmark
    • ,
  • I. Henningsen

      Affiliations

    • Department of Mathematical Sciences, University of Copenhagen, Universitetsparken 5, 2100 Copenhagen Ø, Denmark
    • ,
  • L. Skovgaard

      Affiliations

    • The Danish Multiple Sclerosis Society, Mosedalvej 15, 2500 Valby, Denmark
    • Department of Public Health, University of Copenhagen, Øster Farimagsgade 5, DK-1014 Copenhagen K, Denmark
    • Corresponding Author InformationCorresponding author at: Department of Public Health, University of Copenhagen, Øster Farimagsgade 5, DK-1014 Copenhagen K, Denmark. Tel.: +45 35327937.
    • ,
  • L. Launsø

      Affiliations

    • The Danish Multiple Sclerosis Society, Mosedalvej 15, 2500 Valby, Denmark
    • The National Research Centre on Complementary and Alternative Medicine (NAFKAM), University of Tromsø, Norway
    • The author L.Launsø died in 2009.

Received 22 July 2011 ,Revised 3 October 2011 ,Accepted 3 October 2011.

References 

  1. Thorne S, Con A, McGuinness L, McPherson G, Harris SR. Health care communication issues in multiple sclerosis: an interpretive description. Qual Health Res. 2004;14(January (1)):5–22
  2. Kirkpatrick Pinson DM, Ottens AJ, Fisher TA. Women coping successfully with multiple sclerosis and the precursors of change. Qual Health Res. 2009;19(February (2)):181–193
  3. Kjøller M, Juel K, Kamper-Jørgensen F. Public Health Report Denmark 2007 [Folkesundhedsrapporten Danmark 2007]. Copenhagen: Statens Institut for Folkesundhed; 2007;
  4. European Multiple Sclerosis Platform (EMSP) . Recommendations on rehabilitation services for person with multiple sclerosis in Europe. Brussels: European Multiple Sclerosis Platform; 2004;
  5. Bentzen J, Flachs EM, Stenager E, Brønnum-Hansen H, Koch-Henriksen N. Prevalence of multiple sclerosis in Denmark 1950–2005. Mult Scler. 2010;16(5):520–525
  6. Marrie RA, Hadjimichael O, Vollmer T. Predictors of alternative medicine use by multiple sclerosis patients. Mult Scler. 2003;9(October (5)):461–466
  7. Storr LK. Rehabilitation of people with multiple sclerosis in Denmark. A population based analysis of needs, resources, and efficacy of inpatient rehabilitation. Ugeskrift for læger. 2006;168(22):2189
  8. Murphy SM, Rogers A, Hutchinson M, Tubridy N. Counting the cost of complementary and alternative therapies in an Irish neurological clinic. Eur J Neurol. 2008;15(December (12)):1380–1383
  9. The Danish Multiple Sclerosis Society . Scleroseramtes brug af alternativ behandling [Use of alternative treatment by people with multiple sclerosis]. 2010;http://www scleroseforeningen dk/Fakta-om-Sclerose/Behandling/Alternativ%20behandling/Scleroseramtes-brug-af-alternativ-behandling aspx [cited 3.3.10]
  10. Fadlon J, Meridians . Chakras and psycho-neuro-immunology: the dematerializing body and the domestication of alternative medicine. Body Society. 2004;10(4):69–86
  11. Salomonsen A, Launsø L, Kruse T, Elisabeth E, Sissel H. Unexpected courses of multiple sclerosis among patients using complementary and alternative treatment. Int J Qual Stud Health Well-Being. 2009;5(2):1–1902.07.2010
  12. Launsø L. Behandlerens virkningsantagelser og brugeres egenindsats – når mennesker med kroniske sygdomme møder etablerede og alternative behandlere [The practitioners impactassumptions and the users self contribution – when people with chronic diseases meet established and alternative practitioners]. Tidsskrift Forksning i Sygdom og Samfund. 2008;9:97–112
  13. Launsø L. Use of alternative treatments in Denmark: patterns of use and patients’ experience with treatment effects. Altern Ther Health Med. 2000;6(January (1)):102–107
  14. Paterson C, Baarts C, Launsø L, Verhoef MJ. Evaluating complex health interventions: a critical analysis of the ‘outcomes’ concept. BMC Complement Altern Med. 2009;9:18
  15. Baarts C, Pedersen IK. Derivative benefits: exploring the body through complementary and alternative medicine. Sociol Health Illn. 2009;31(July (5)):719–733
  16. Olsen SA. A review of complementary and alternative medicine (CAM) by people with multiple sclerosis. Occup Ther Int. 2009;16(1):57–70
  17. Siev-Ner I, Gamus D, Lerner-Geva L, Achiron A. Reflexology treatment relieves symptoms of multiple sclerosis: a randomized controlled study. Mult Scler. 2003;9(August (4)):356–361
  18. Schwarz S, Knorr C, Geiger H, Flachenecker P. Complementary and alternative medicine for multiple sclerosis. Mult Scler. 2008;14(September (8)):1113–1119
  19. Huntley A, Ernst E. Complementary and alternative therapies for treating multiple sclerosis symptoms: a systematic review. Complement Ther Med. 2000;8(June (2)):97–105
  20. Launsø L. Integrated medicine in practice – a challenge to the health care system. Acta Sociol. 1989;32(3):237–251
  21. Bell IR, Caspi O, Schwartz GE, Grant KL, Gaudet TW, Rychener D, et al. Integrative medicine and systemic outcomes research: issues in the emergence of a new model for primary health care. Arch Intern Med. 2002;162(January (2)):133–140
  22. Scherwitz L, Stewart W, McHenry P, Wood C, Robertson L, Cantwell M. An integrative medicine clinic in a community hospital. Am J Public Health. 2003;93(April (4)):549–552
  23. Mann D, Gaylord S, Norton S. Moving toward integrative treatment: rationales, models, and steps for conventional-care providers. Complement Health Pract Rev. 2004;9(3):155–172
  24. Mulkins A, Verhoef M, Eng J, Findlay B, Ramsum D. Evaluation of the Tzu Chi Institute for Complementary and Alternative Medicine's Integrative Care Program. J Altern Complement Med. 2003;9(August (4)):585–592
  25. Nyborg L, Launsø L. Utprøvninger av alternativ behandling innenfor helsevesenet i møte mellom helsepersonell og alternative behandlere [Trials of alternative treatment in the health care system in meeting of the health care personnel and alternative practitioners]. NAFKAM. 2008;5
  26. Kruse TE. Intepretation of illness and use of history. A patients perspective on causes of illness and roads to healing [Sygdomsfortolkning og historiebrug: Et patientperspektiv på årsager til sygdom og veje til helbredelse]. Bibliotek for læger. 2009;201(4):413–431
  27. Fønnebø V, Launsø L. High use of complementary and alternative medicine inside and outside of the government-funded health care system in Norway. J Altern Complement Med. 2009;15(October (10)):1061–1066
  28. Launsø L. Det alternative behandlingsområde. Brug og udvikling; rationalitet og paradigmer [The field of alternative treatment: use and development. rationality and paradigms]. København: Akademisk Forlag; 1996;
  29. Mulkins AL, Eng J, Verhoef MJ. Working towards a model of integrative health care: critical elements for an effective team. Complement Ther Med. 2005;13(June (2)):115–122
  30. Verhoef MJ, Mulkins A, Boon H. Integrative health care: how can we determine whether patients benefit?. J Altern Complement Med. 2005;11(Suppl. 1):S57–S65
  31. Gamst A, Haahr N, Kristoffersen AE, Launsø L. Integrative care and bridge building among health care providers in Norway and Denmark. J Altern Complement Med. 2006;12(March (2)):141–146
  32. Vohra S, Feldman K, Johnston B, Waters K, Boon H. Integrating complementary and alternative medicine into academic medical centers: experience and perceptions of nine leading centers in North America. BMC Health Serv Res. 2005;5:78
  33. Sundberg T, Halpin J, Warenmark A, Falkenberg T. Towards a model for integrative medicine in Swedish primary care. BMC Health Serv Res. 2007;7:107
  34. Kaptchuk TJ, Miller FG. Viewpoint: what is the best and most ethical model for the relationship between mainstream and alternative medicine: opposition, integration, or pluralism?. Acad Med. 2005;80(March (3)):286–290
  35. Shuval JT, Mizrachi N, Smetannikov E. Entering the well-guarded fortress: alternative practitioners in hospital settings. Soc Sci Med. 2002;55(November (10)):1745–1755
  36. Shuval JT, Mizrachi N. Changing boundaries: modes of coexistence of alternative and biomedicine. Qual Health Res. 2004;14(May (5)):675–690
  37. Boon HS, Kachan N. Integrative medicine: a tale of two clinics. BMC Complement Altern Med. 2008;8:32
  38. Hollenberg D. Uncharted ground: patterns of professional interaction among complementary/alternative and biomedical practitioners in integrative health care settings. Soc Sci Med. 2006;62(February (3)):731–744
  39. Gamus D, Pintov S. Integration of complementary and alternative medicine services in the hospital setting in Israel. Isr Med Assoc J. 2007;9(March (3)):169–170
  40. Launsø L, Rieper J. General practitioners and classical homeopaths treatment models for asthma and allergy. Homeopathy. 2005;94(January (1)):17–25
  41. Rieper J, Launsø L, Rieper O. Diskursanalyse som metode til læring i et inter-professionelt felt med et eksempel fra brobygning mellem etableret og alternativ behandling [Discursive analysis as a learning method in an inter-professional field of bridge building between conventional and alternative treatment]. Nordiske Organisasjons-Studier (NOS). 2005;7(3–4):111–136
  42. Launsø L, Haahr N. Bridge building and integrative treatment of people with multiple sclerosis. research-based evaluation of a team-building process. J Complement Integr Med. 2007;4(1):
  43. Launsø L, Haahr N. Brobygning mellem etablerede og alternative behandlere [Bridge building between established and alternative practitioners]. Tidsskrift for Forskning i Sygdom og Samfund. 2007;6:75–96
  44. Shadish WR, Cook TD, Campbell DT. Experimental and quasi-experimental designs for generalized causal inference. New York: Houghton Mifflin Company; 2002;
  45. Rossi PH, Lipsey MW, Freeman HE. Evaluation: a systematic approach. 7th ed.. Sage Publication; 2004;
  46. Sharrack B, Hughes RA. Clinical scales for multiple sclerosis. J Neurol Sci. 1996;135(January (1)):1–9
  47. Bjerre L, Skovgaard L, Launsø L. Technical Report I – Design, materials and methods. 2011;www scleroseforeningen dk/technicalreport1
  48. Haahr N, Launsø L. Preliminary initiatives in a bridge building project between conventional and alternative practitioners in Denmark. Forsch Komplementmed. 2006;13(October (5)):307–312
  49. Coulter ID, Ellison MA, Hilton L, Rhodes HJ, Ryan G. Hospital-based integrative medicine. a case study of the barriers and factors facilitating the creation of a center. Rand Health. 2007;
  50. Skovgaard L, Bjerre L, Haahr N, Launsø L. Types of collaboration between conventional and alternative practitioners – results from a research project at a Danish sclerosis centre. Int J Integr Care. 2010;10:
  51. Launsø L, Skovgaard L. The IMCO scheme as a tool in developing team-based treatment for people with multiple sclerosis. J Altern Complement Med. 2008;14(January (1)):69–77
  52. Smuts JC. Holism and evolution. London: MacMillan & Company; 1927;
  53. Cella DF, Dineen K, Arnason B, Reder A, Webster KA, karabatsos G, et al. Validation of the functional assessment of multiple sclerosis quality of life instrument. Neurology. 1996;47(July (1)):129–139
  54. Thastum M. Quality of life indicators and children [Livskvalitetsmål og børn]. Ugeskrift for læger. 2008;170(10):834–838
  55. Storr LK. Rehabilitation of people with multiple sclerosis in Denmark. A population based analysis of needs, resources and efficacy of inpatient rehabilition. København: Institut for Kliniske Neurofag og Psykiatri; 2006;
  56. Bjerre L, Skovgaard L. Technical Report II – Quantitative analyses. 2011;www scleroseforeningen dk/technicalreport2
  57. Jansen DE, Krol B, Groothoff JW, Post D. Integrated care for MS patients. Disabil Rehabil. 2007;29(April (7)):597–603
  58. Pozzilli C, Brunetti M, Amicosante AM, Gasperini C, Ristori G, Palmisano L, et al. Home based management in multiple sclerosis: results of a randomised controlled trial. J Neurol Neurosurg Psychiatry. 2002;73(September (3)):250–255
  59. Makepeace RW, Barnes MP, Semlyen JK, Stevenson J. The establishment of a community multiple sclerosis team. Int J Rehabil Res. 2001;24(June (2)):137–141
  60. Skovgaard L, Bjerre L. Researching conventional and alternative practitioners’ treatment assumptions – developing an integrated programme theory for combination treatment for people with multiple sclerosis. Eur J Integr Med. 2010;2(4):237
  61. Skovgaard L, Launsø L, Kryger Pedersen I, Haahr N. Combination treatment of people with multiple sclerosis based on collaboration between healthcare providers and alternative practitioners – patient perspectives on outcome. J Complement Integr Med. 2011;8(1):Article 31

PII: S1876-3820(11)00162-4

doi: 10.1016/j.eujim.2011.10.004

European Journal of Integrative Medicine
Volume 3, Issue 4 , Pages e271-e279 , December 2011

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